Help using this site

30 June 2020

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How do I join the Online Community?

What should my username be?

Your username is the public name you will be known by on the site, which will appear next to all of your posts. To protect your privacy, please don’t use your real full name or contact details.

You can use your real first name as part of your username if you choose, or pick a more anonymous alias (for example, something like ‘CatLady’, ‘FootballFan’, or ‘ShiningStar’).

How do I log in to the Online Community?

If you are not sure whether you are logged in, look in the top right of your screen. If you are logged in you will see your own profile image. If you are logged out, you will see links to log in or sign up.

How do I get started on the Online Community?

Once you have joined, there are three ways to interact on the Online Community:

Conversations can be seen by everyone, but private messages can only be seen by the person you are sending them to.

How do I start a new conversation?

How do I tag my conversation?

When starting a new conversation, you have the option to add up to 2 “tags”.

Tags help to organise conversations by grouping conversations which discuss similar topics. For example, if you tag your post, “finances”, then others who are looking for support on this topic will easily able to find your thread.

To add a tag to your conversation:

You may find this quick video helpful:


You can also see all threads with a specific tag by clicking on the tag, which you can do on the community feed, or within the conversation itself:

You can also filter conversations by tags by clicking, “All tags” then finding the one you wish to view.

You can view all tags by visiting the tag page which you can access from the menu:

How do I reply to an existing conversation?

How do I find relevant conversations?

Every conversation on the Online Community has a category, to help you find conversations between people with similar experiences. To look for posts in a specific category:

You can also search the community:

You can also filter conversations by, “Tags”.

How do I edit my post?

You can edit your post for 10 minutes after publishing it. After this, you will not be able to edit, as it can be misleading or confusing for posts to be changed after people have already replied to them.

If your post was published within the past 10 minutes:

If your post was published more than 10 minutes ago and you still wish to change it, please contact the community manager by emailing

How do I put a picture in my post?

How do I put a link in my post?

You can also just paste or write the link directly in the body of your post as you are writing it.

How do I send a private message?


How do I know if someone has replied to my post?

You will get notifications on the site when someone replies to a conversation you have started or posted in, when someone sends you a private message, when someone likes your post or tags you in a post.

The notifications are a green circle with a number inside, which appear next to your profile picture in the top right of the site.
You also have the option to turn on email notifications for private messages and replies.

What do I do when I get an email notification?

An email notification will tell you that you have had a reply, but you will need to visit the site to read the reply.

How do I control my email notifications?

How do I fill out my profile?

How do I change my profile picture?

What if I see a post I don’t like?

As in any group of people, disagreements will sometimes happen on the Online Community, but our Community Guidelines ask that users treat each other with respect and avoid personal attacks or abuse.

If you see a post that might break this or any of the Community Guidelines, please don’t reply – this can escalate the situation and further distract from people getting support. Instead, please let the community manager know privately by clicking the flag button under the post or emailing

What if I’m worried about another user?

All our users are dealing with bereavement and may be in very difficult emotional states. If you are ever worried that another user is at risk of harm, please let the community manager know privately by clicking the flag button under the post or emailing We will do our best to make sure that they get further support if needed.

How do I ‘like’ a post?

Sometimes you might see a really helpful, well-written or inspiring post, but not feel able to type a reply. In that case, you can ‘like’ a post to show your appreciation. To do this, click the heart symbol under the post.

How do I tag another user?

If you would like to invite another user to join a conversation, you can ‘tag’ them when you are writing a post. To tag, type the ‘@’ symbol and then type their username (or start typing it and then select it from the menu of names that come up).

When you publish your post, the user will get a notification that they have been mentioned.

Who runs the Sue Ryder Online Community?

Sue Ryder is a UK charity offering palliative, neurological and bereavement support. The Online Community is free to use and funded by voluntary donations. Help keep your community running – donate today.

How is the Online Community monitored?

The Sue Ryder Online Community is monitored and moderated to help keep it a safe and supportive place for everyone. Our community manager or moderation team are usually here from 9am - 5pm on weekdays, weekday evenings from 8pm -10pm and weekend days from 8am - 9 am then 7pm - 10pm.

While we try to keep a close eye on the site, we can’t guarantee to read every post, and posts are not checked before being published. So if you see something that concerns you, please do let us know by flagging the post or emailing us at

Private messages are not routinely monitored by the moderation team, but can be checked if a problem is reported.

How do I get in touch with you?

Please email our community manager Seaneen and the moderation team at