Just joined this group hello to you all thank you for being here

I recently lost my wife Jenny who I cared for who had Huntington’s Disease (we also both cared for her mum who had HD). She was my hero, my co-pilot in life, my twin flame. She beat all the predictions the medical world gave her, she was so graceful. When was not fighting HD she was busy living. I passed her to the angels in my arms as I always made her feel safe and loved. Being loved makes you stronger and loving someone else makes you braver as it leaves you vulnerable. This I can now feel as I take life one second at a time trying to make sense of this loss that has left fragile and vulnerable for the first time in my life. Sue Ryder helped us a lot years ago and got us through a tough time when we had no care support. I am hoping I can maybe find some answers here with like minded folk who understand this pain. Thank you all for reading this my first post which is hard for me as I am not comfortable asking for help.

4 Likes

Hello @Tony11,

I’m part of the Online Community team and I can see that you are new to the community - I’d like to thank you for bravely starting this thread and sharing how you are feeling fragile and vulnerable. I’m so sorry to hear about your wife. Most community members have sadly experienced the death of a loved one and so will understand some of what you are going through.

I’m sure someone will be along to offer their support. In the meantime, you may wish to look at these Sue Ryder resources which might be helpful.

  • Our Grief Guide self-help platform which has information, resources and advice to help you through your grief

  • Our Bereavement Information pages which can walk you through what you are going through.

I really hope you find the community helpful and a good source of support and I also hope you feel you can access more support should you need it.

Thank you again for sharing – please keep reaching out and know that you are not alone.

Take care,

Alex

I also joined feeling confused and alone ,some Canadian friend of mine told me a bout this site, when I read through posts I feel relieved, it gives me a sense of i am not a lone, we are many in this journey with the goal of finding comfort & freedom again. It feels like home here .

Welcome please. :folded_hands: