Hi I lost my husband in March 26 to Glioblastoma (brain tumour) that he battled for 16 months. I have been with my husband for 27 years and we have 2 adult daughters, a granddaughter and 3 dogs. Struggling with finding a new normal, one daughter still lives at home. I have started a phrased return ro work to help myself and dogs get used to it as when left at first they were very unsettled. Walking them twice a day has given me a purpoae. Feel life is a struggle and have good and bad days with anxiety and loneliness. Miss my husband so much we shared everything the housework, shopping, walking dogs and we would talk through life.
4 Likes
Dear Chucky, so sorry about your loss! Losing one’s soulmate is one of the hardest and most painful things in life - I hope you can find some good advice and kind words in this site, which has been a lifeline to me since my husband died on Feb 28. Wishing you all the best 
2 Likes
Thsnk you. Sorry for your loss. Yes its so hard but I try take things dsy at a time
2 Likes
Glioblastoma is a cruel illness, my current partner has it and has been given only weeks left. The initial prognosis was 11-15 months, but the tumour had progressed so much that he was deemed unsuitable for radiotherapy and chemotherapy, so now the prognosis is “weeks to short months”
His mind is still sharp, but he can barely talk now, numbness and completely bed bound, mobility gone except for his left arm, also chest infections now, and personality changes from the steroid/keppra medication. It’s a tough illness to witness.
3 Likes
Hi Chucky, I was very sad to hear about your husband. My wife put up a fight of two years against a cholangiocarcinoma and died on Christmas day. We have two dogs and they would lie with her on the sofa. She was worried that they would think she had abandoned them. Especially as they had been abandoned before we adopted them. That’s why she wanted to die at home unfortunately she didn’t get the chance to as she died in hospital in my arms.
I hope you find some solace here where everyone understands what you are going through. Wishing you all the strength you are going to need.
All the best
Tom
4 Likes
Hello Chucky, so sorry for the loss of your husband. I lost my beautiful husband in March as well. I’m glad you still have a daughter with you at home. It helps not to be totally alone. I’m alone at the moment. But my son wants to move back home with me, so I won’t be alone. God bless you.
4 Likes
Hello Tom, is that your wife? She’s beautiful. God bless
3 Likes
Thanks Lucy, that’s my lovely wife 
Wishing you all the best
Tom
2 Likes
Its really is so cruel. Sending love. Take it one day at a time
3 Likes
Thank you. Yes dogs do notice there missjng owners. Sending love
3 Likes
Sending love its so hard. Hopefully havinv your son home will give you some support
2 Likes
Hello. Yes having my son back home with be a Godsend, but I want the life I use to have with my husband 
. You take care as well, God bless
2 Likes
I totally agree, I want my hubby too
2 Likes
Hello. I’ve been looking through my photo albums. My was my husband good looking when we were younger. Makes me miss him even more. Just thought I’d share. God bless
4 Likes
Dear Chucky81!
I’m also a new member here. Anxiety became my new reality and I try to fight it without pills. Nights are terrible and mornings the hardest. My most beloved husband died the last year and after 6 months I had to find a job to have enough money for paying bills, I had to learn that all just by myself, all alone in a foreign country. I have a big garden full of birds and other animals giving me a comfort and purpose as well. Finding this forum is a huge relief for me.
Janka
3 Likes
Sorry yes anxiety is awful and comes at anytime. Sending love
3 Likes
My husband was the same mobility and speech
It’s such a nasty cancer life is so cruel.
It is cruel that it has reduced your time. But it maybe a blessing. Chris had chemotherapy and radiotherapy and he lived in fear stripping him of all his confidence and normal life . Knowing all the time that the end could come at any time. Only now he has passed the enormity of his struggles where there every hour.
My heart goes out to you and family
4 Likes
Thank you
1 Like
I think what is so galling is how lacking the information was, that we got from the NHS. They just said its an aggressive brain tumour, but nothing was given in terms of the progression, and symptoms
No warning that brain tumours can cause a completely catastrophic loss of mobility, or that the steroids/keppra meds would turn him into a raging bull, or that he would lose the ability to speak. So the journey so far has been blindside after blindside.
Not impressed with the NHS, last two days has been a sisyphean task to get oral morphine, or any morphine for that matter. He had to wait 6 hours (in agony) for a palliative nurse to come to his place to administer it.
And spent this morning talking to the most dopey GP receptionist (the usual receptionist, who is sharp and on the ball, has seemingly resigned?). Even tomorrow, I need to see if the meds have arrived.
He seemed okay today, lethargic and only able to whisper now, chest infection not helping either.
2 Likes
Hi Plutorising, the truth is that doctors really know very little about anything. The day they just use ai will be an advance. Even when they are competent in their field they always miss what ever else is going on in the body. They are confined to an organ or two as if they work independently to the rest of the body. Most doctors will just smile at you as if you are a child but when you talk about something in-depth they change the subject or get irritated.
I hope your partner suffers as little as possible.
Wishing you all the best
Tom
2 Likes