My son was only 36 when he passed away on November 13th 2021. Tom had an extremely rare condition called CMT4J, CMT isn’t rare, it was the sub-type. The deterioration in Tom started to come quickly in the 6 weeks before he died. Tom was a very intelligent young man, his disability was physical, he adapted to every change with dignity, he never asked ‘why me?’.
It’s almost 2 years since Tom passed, I still ‘lose time’, I cry every day, I miss my wee boy. I miss his dry sense oh humour, his way of doing things - Tom had OCD, his love.
Thanks for listening,
Susan, your son sounds like a wonderful person who you love dearly. I have lost my 34 year old daughter and I hope knowing you are not alone in your grief, will bring you some kind of relief. It is good to have this place where you can tell others about our wonderful children. My daughter was a beautiful, caring, passionate person who brought joy to so many people in her life. We each have lost someone very special and precious. I hope my message helps you today.
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Hi Susan
I lost my beautiful son Tom in January and I miss him so much every day. My Tom had congenital heart disease, Addisons, type 1 diabetes and Hashimoto but he also never asked ‘why me?’ Every night I tell Thomas I’m so honoured to have been his mum, our children were so much stronger than us. I’m struggling with the loss but I’m so thankful he was my son. Be kind to yourself x
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