@Pest and @Lydia3 I’m so sorry for your experiences . It’s truly heartbreaking.
My son who had special needs, died age 47 from secondary bone cancer .He started getting pain in spine and hips. Was told muscular ,to rub deep heat in by doctor at walk in hospital and when I by physio when I tried to get physio for him.Was then told there was A three months waiting list .
Because he has epilepsy and under active thyroid, he did have a liver function blood test every 3 months. The last blood test showed his liver function was high (that could show that there is something wrong with the bones. He had another test booked for the day he was rushed into hospital .When I got him to hospital the young doctor said she could feel a mass on his hip.I don’t know why the doctor at walk in Clinic and the Physio could not feel it . When I asked I was told it was a mistake.I t would not have made the prognosis any different, but it would have saved him a lot of pain. At first they could not find the primary cancer as he had no symptoms, just before he died they found a tiny ulcer (20mm) on the lesser curve of the stomach. They tried everything the cancer once it spread to bone was so fast
I’m recovering today, 1st day at home after 20 hours at the hospital, Stem Cell Collection. I kind of enjoyed the day at home. It’s tiring at hospitals and sometimes it can feel too much. I was diagnosed back in June with Myeloma Cancer back in June and loss mum back in August last year. As for not knowing life expectancy as for consultant telling me it would shorten my life, that’s were it stops. Like you I didn’t want to know either. Just like I didn’t want to know what the surgeon was going to do when he inserted the Hickman line in me a few weeks ago.
I had to fight for treatment. I had bleeding back and front was told it wasn’t cancer so I said it is still there can I have a diagnosis please. You haven’t even tested for a urine infection. Grudgingly it was done and I had an infection so I was correct all along. I was expected to put up with bleeding which I couldn’t function with just for sake of having antibiotics to clear it up. No apology for not giving me proper treatment. I was made to feel a nuisance.
That’s terrible!
if you want a urine test done at our drs, you just take a sample in and they do it the same day, never have to ask. as for wanting to know how long i had, i would want to know, you can get things done thsat you need to do then. and with my phobia no one would be inserting anything into me lol
My chain smoking friend convinced himself for over 10 years (through self-diagnosis) that he suffered from Chronic Obstructive Pulmonary Disease and refused to see a doctor or get his teeth professionally cleaned. It was lung cancer. He died at 64 years of age.
One of the oldest quotes is “there’s none so blind as he that will not see” my wife of nearly 37 years and drank profusely even after being diagnosed with type 2 even after a massive stroke taking the entire right brain and leaving her wheelchair bound and having a second and third stroke making her bed bound and finally kidney failure and an agonising death, despite the hidden bottles around the house would not admit to being an alcoholic, always “I like a drink now and again so what,” explained that drinking after insulin made the taking of insulin pointless, the the addiction to laxatives because she wasn’t going then taking to many other over the counter drugs that had the opposite effect, and I helped nurse her almost to the end, council/social services put her in a home when she became terminally ill and still she drank. Some people are just self destructive the only person they care about is themselves but they take others with them, I myself ended up in counselling made to feel it was my fault lost weight became very ill and was told I’d probably be dead before her if I didn’t put my health first and move out of our family home of 37 years, it nearly killed me but I managed it and now started to recover, it’s slow and I’ll probably retire before I’m fully recovered but with the one or two friends that have actually stuck around I’ll make it.