We thought my husband was dying this morning -he has rallied a bit but was very scared and. Crying for ages-unbearable to see -his brain is still perfect but nothing else works-this horrendous disease has ruined our lives
I am so sorry. Amongst the medical community itās said that the disease most feared by all of them. But Steven Hawkins survived for about 50 years???
Nobody but he knows how.
All I can say is, here is a humongous cyberhug from all of us.
Christie xxxxx
He had a very slow tpe
Itās hard to watch our men go from being fit.to going down hill becoming a shadow of there former self.
Donāt want anyone to see them.remember them 4 all good times.
Hopefully It does get easier.as time passes by.
Karen x
My hubby getting worse by the day hun so not sure it will x
Dear All, I am sorry I have not been in touch.
My lovely Jeff passed away on Tuesday 16th February. I feel soooo lonely.
This terrible MND disease needs to be cured. We canāt go like this - with no hope and just watch how our loved one is deteriorating alive.
https://jeffpearman.muchloved.com/
Thank you!!! And thinking of you all. BE STRONG!
Petra xxx
I hone helly, it is truly hell
Ahh hun so so sorry pete passed away on the 5th we have the funeral this Friday we arenāt having flowers we are donating to.mnd instead so far we have raised 2400 we need to get a cure for this disgusting disease to many have to suffer xxx
Hello Helly, I am so sorry to hear your sad news.
Yes, we are raising money to MNDA as well. I created a page for Jeff so it is more personal.
Muchloved.com is their page.
I will be thinking of you on Friday!
X
Its horrible hun .y heart goes out to you also hun thsnk you I. Hoping all goes OK they keep making mistakes on the order of service etc x