My son

[Seaneen]

Hello @Blossom4,

Thank you for reaching out. I’m so sorry for the loss of your son. We have some really supportive threads for people who have lost an adult child. You might want to post on this one and connect with others:

My son died aged 33

My wonderful son died at the end of November and we are in bits. He had been suffering from long covid for some months, or so we thought, but we now suspect it might have been heart problems all along. He had chest pain, a persistent cough, night sweats and extreme fatigue. We tried so hard to support him when he was unwell, inviting him to stay in our home, and trying to persuade him to go back to the doctors. It was very difficult to get an appointment and he kept saying the doctors couldn’t d…

Are your husband and son getting any support after finding out they had the gene? I can imagine that must be very frightening for you all to live with. The British Heart Foundation has some advice on genetic testing and counselling on their website which you may find helpful.

I hope you find the community to be a support to you - you are not alone.

Take care,
Seaneen