Could I ask if any one has lost a child from hypertrophic cardiomyopathy, it is thickening around the heart. Although the hospital knew he had the condition they never gave him any check ups despite me trying to get appointments. It feels like he was neglected and I am so angry on top of all the other emotions I am feeling.
Hello @Sue516,
I’m so sorry about your son. I’ve had a look and @Lisa7093 mentions her son Sam’s initial report said he had suffered from this. She talks about it in this thread:
Maybe you can chat with each other?
They also mention Cry (Cardiac Risk In the Young) who you may want to get in touch with, if you’re not already in touch.
Take care 
Thank you so much. I am totally devastated by it. I will see if I can speak with her. x
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