Great news! I’ve been thinking about you, wondering how you were getting on.
John was on a Clinical Trial soon after being diagnosed with matstatic Colon Cancer. He was given Avastin, alongside Oxilaplatin and 5-fluorouracil (also known as 5FU) He had a Hickman line fitted so he wouldn’t end up like a pin cushion and it also is more convenient for the nurses. At the end of the chemo session a small pump was fitted to the hickman line with the 5FU drug which was released over 48 hours and the District nurse had to come home to remove it and flush the line to avoid infection.
Not everyone has the same side effects - the most common are: tiredness; feeling sick; sore/dry mouth. For the first two days following each chemo Christies gave a couple of anti sickness tablets and a couple of steriods (we called these the happy pills) The steriods helped with the tiredness for the first couple of days.
We were told to check his temperature twice a day every and if there was any change to let them know immediately. Unfortunately John suffered from a lot of side effects one of the main ones was neuropathy - Let the hospital know if you have tingling in your hands/feet.
You’ve probably already been provided with infomation by your hospital. However, There’s a booklet called ‘Side Effects And Symptoms’ and several others i.e. Diet for Cancer Patients; Carers etc. available from the hospital or Macmillan website
http://www.macmillan.org.uk/information-and-support/treating/clinical-trials/what-does-a-clinical-trial-involve Telephone: 0808 808 00 00
We tried to keep John away from family and friends with colds and infections. Also were very careful and avoided certain dairy products; raw eggs, live yoghurt, cream cheese etc.
As I said each chemo and individual has it’s own side effects. Just be careful and don’t hesitate to contact the helpline if you feel unwell or have any doubts.
Good Luck Cookie and keep posting your progress.