Hi. I’m 78 years old gay woman. My soulmate is dying of a glioblastoma and currently in a nursing home. This diagnosis came as a shock as she was very fit and active. I know this is incurable and slowly becoming worse. Seeing her gradually getting worse is hard to see. Now unable to walk, eat unaided, become incontinent, sleep for very long periods is so heartbreaking. I try to keep my feelings hidden when I visit. I’m finding it very hard as talking about things just gets me upset. I’m feeling very isolated and alone. I’m grieving for her yet she’s still here. Is there anyone out there going through similar things?
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Hello @JennyD,
I’m Alex, and I’m part of the Online Community team. I wanted to say thank you for bravely reaching out. I’m so sorry to hear about your soulmate’s diagnosis and the difficult changes you’re witnessing.
I’m sure someone will be along to offer their support, but I wanted to share a few resources which might be helpful right now.
- Our Supporting someone at the end-of-life pages contain practical advice for those helping someone close to death and information about what you can expect when death is near.
- Our Anticipatory grief page talks about the feelings associated with grief in the days, months or years before someone dies. This is known as anticipatory grief, as you are grieving for someone who is still alive.
I hope you find the community a good source of support to you.
Take good care - you are not alone.
Alex
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