Firstly I want to say how great it is to have this. Wish it had been about around 10 years ago when it all started.
We’ve had various diagnosis along the way from prostate to lung, various new sites and finally at Christmas bowel cancer.
Throughout it all my Dad has been so brave and I’m so proud of him. There is so much of him in me - stubborn and putting on a brave face. Although he’s from the older generation of getting on with it and not bothering anyone. Whereas I’m definitely emotional like my Mum.
He proved that you need to live your life to the full and enjoy opportunities while you can. I’ve certainly done that but I’m back as I always planned to be to help out.
The deteriation in one year has been varying from sudden with recovery to sudden and gradually more.
We’re in the last stages and information has been a real help to me. Not from anywhere as that can become scary but from a few reputable sites.
I’ve found hospitals Drs to be informative but also as so many unknowns have been involved quite vague. I know life isn’t always straightforward but guidance helps. One nurse was great “step by step”.
Today I spoke to the doctor frankly, don’t know if it was because I was on the phone but it felt easier to talk openly and fairly bluntly.
We’re in the final stages maybe weeks but who knows what our maker has in plan.
I know that I’ve helped and supported him along the way. I know my Mum couldn’t do anymore either.
Last year I volunteered at an open evening with some learners and looked around. I talked openly about it, that is where I want him to go when it gets to much at home. That is up to him and the care we have in place. We have fab Sue Ryder nurses who visit at home, Macmillan nurses and a private carer plus family.
I now feel informed and that makes me calm but it took a lot of enquires to get here.
Good luck to everyone!