First year.

I sadly lost my youngest daughter suddenly a year ago on 20th Jan 2025 aged just 25 to an extremely rare genetic condition that we knew nothing of until after. Whilst coping with grief, my son and I had to be genetically tested too for the life threatening syndrome at 50/50 odds, Thankfully my son got the all clear, I have not had my results but the genetic doctors think I have it too as I have traits of it. I am petrified I’m not going to lie. If all this was not enough, whilst being tested her dad, my partner of 30 years got told he has to have open heart surgery within weeks to save his life, what they found was unrelated. If my daughter had not passed, he would of been gone within the year. I have bad days and not so bad days. yet to have any good days. I don’t have any friends as my daughter was my best friend, we did so much together, days out as a family and girly shopping days and spoke everyday. to suddenly stop was devastating, I’ve never felt such gut wrenching heart ache.

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I understand. I lost my 41 year old first born child, my only daughter and my best friend. I found her dead on 26/11/24 from a spontaneous intracranial haemorrhage. She died on her own. Her brother 8 years younger has just become unemployed and I would have spoken to my daughter Lauren and she would have stopped me panicking, Lauren’s eldest daughter ( now 18) lives with us now and she is on holiday skiing with a friend. She didn’t ring me this afternoon as she said she would so I started imagining the worse scenario, dead on the slopes. Lauren would have stopped me catastrophising. I’ve got to have an op ( new hip) in February and I’m scared. I have already had one replacement hip other leg and I was better than fine. I know if Lauren was here I wouldn’t be this worked up. Even though I can talk to my hubby and he is brilliant, I want to talk to Lauren.

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Hi Bam I am so so sorry for your loss of your daughter Lauren, The bond between mother and daughter I just took for granted as my Jenn was so young and I thought healthy-ish. she also died alone from an aorta haemorrhage. I hope your Op all goes well I am sure it will. I am new to this site (yesterday)

Tra68 I’m so sorry for your loss. Losing a daughter is heartbreaking, particularly if you were best friends. I took early retirement from teaching in the August so we could spend more time together. Lauren worked 4 days so we planned weekends away, spa sessions and shopping trips etc for the Friday that she didn’t work.

I spoke to her in the morning and we ended the call with our usual ‘ speak to you later, love you.’ I rang her in the afternoon and there was no answer. I went round with hubby and she was on the floor. She had been dead about 6 hours, she had died within an hour of speaking to me.

I had not seen her for 4 days because I had been away with hubby for the weekend. Guilt.

She had been off work for a week with a tummy bug and a headache , the inquest said it was not related to her death. Why didn’t I make her go the drs or hospital? I told her the headache was probably because she was lay scrunched up on the settee and the strain of vomiting. I feel like I failed her. I should have took her to hospital. Maybe they would have found the bleed or the vessel ready to burst and been able to do something.

I just want my girl

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My Jenn went to work as normal on the Monday morning, she had just been promoted to professional photographer after just 2 years as an apprentice, we were so proud of her. She was in the process of buying her first home to with her fiancee, 20 mins later she was gone. Two days earlier the Saturday we had gone to the bingo together and had such a fun time, a lot of giggles and quality time just the two of us. The Sunday the day before, she asked me if I would go and collect her new glasses with her, I had a terrible migraine, but said yes I would come, we had a spot of lunch and usual chats and said our goodbyes as normal. I am so so glad I said yes to going with her. As for the guilt you feel for not seeing her for 4 days, I would take great comfort in knowing that your voice is one of the last she heard. I too feel guilt for not making my daughter go hospital/doctors for her heachaches, she use to say stop stressing mum your answer to everything is go doctors.