14 weeks today and all i want is my husband to hold me and stop this horrible nightmare and pain stop this pain on our autistic son i can’t keep fighting every bloody day my health can’t take much more and I’m sick and tired of it all. I want to scream and I’m getting so bloody stressed and a life time of hell sorry just not doing great
I wish I could help.
Stop, take a breath, a long slow breath in, and a long slow breath out.
Put everything to one side and concentrate on yourself and your son…
Everything else can wait…
Just breathe…
Hi Judy,
So sorry you are struggling. My daughter has autism, along with other additional needs. It is difficult to explain to her something I can’t understand myself. I explain why she can’t see Daddy, she nods her head, points to the sky. Five minutes later she is signing for him again. It just isn’t bloody fair.
I have recently started using Respite for her, just now and then, to get her used to someone other than me caring for her. Just in case, if you know what I mean. My husband’s sudden death started me thinking about my own mortality. Anyway, she seems to enjoy going and it allows me to catch up on sleep, have a long bath instead of a quick shower with the door open so she can see me and I can keep my eye on her, etc.
Is there a similar service you could use, maybe?
I am sorry, I don’t know your circumstances, or your son’s needs. I hope I am not suggesting something inappropriate.
Hugs xx
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Go outside look up at the sky and scream!! it may help? and it will probably piss the neighbours off! but there you go! but not as pissed off as we are by the loss of our husbands! x
Willow112 my son understand what happened to his dad and he is suffering from health anxiety and thinks he’s going to die like his dad did. He was meant to go back to college Tuesday but college haven’t been great and now have big meeting Tuesday coming. Bless you and glad your getting some help for your daughter and it’s not easy on any of us all. X
Jane15 think if i scream i won’t stop. I’m pissed off with the pain we are all suffering x
Scubadolly i do alot of breathing and i get pain in my head as i feel so stressed and like us all it gets to much x
I know that feeling. My daughter has been very difficult and challenging at the day centre. I also have a big meeting this Friday. You would think they would cut the kids a bit of slack, wouldn’t you?
Oh well, whatever happens, we will just have to suck it up and deal with, same as always.
Xx
Unfortunately willow112 we have no choice but fight for our children and just do our best by them. Hope your meeting goes well and things get better x
Thanks Judy, I hope your son gets some understanding too. I will be thinking of you both on Tuesday.
Xx
Thanks Willow112 hopefully something good will come out of it x