Let down by nhs

My son was left to die by the NHS. I took him to A and E several times before he was finally found to have heart failure. By then it was too late. Doctors grasped at straws over a two week period putting it down to anything and everything but his heart. He could have been saved on more than 5 occasions. I am so angry, bitter and devastated. He was just 22.

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Hello @Jules646, I am so sorry for the loss of your son at such a young age - that is devastating. It is completely understandable that you are feeling angry.

If you feel it’s something you want to do, you can make a complaint about an NHS service. If you click on the link, it will walk you through the process.

It’s important to get support for yourself, too. The Compassionate Friends support bereaved parents, children and siblings. They have a helpline - it’s staffed by volunteers who have all experienced the loss of a child. It’s on 0345 123 2304 and open every day of the year from 10:00 – 16:00 and 19:00 – 22:00. You can also contact them by email at helpline@tcf.org.uk

We are here for you too - you are not alone.

Take care
Seaneen

Hi. There is already a serious incident investigation. The hospital referred themselves. Thanks.

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Thank you for the helpline number. I have a counsellor but I really feel that talking to other parents who have gone through this loss is more helpful than counsellors who haven’t experienced the loss of a child, investigation and inquest. . Thank you so much.

Hi Jules so sorry about your son. I to feel that my daughter wasn’t sorted out in time she had breast and liver cancer everything was going to plan she had her treatment then she had her macectomy which went ok. Then in Nov she told. Me she didn’t feel right she was to and fro from hospital they said it was normal for aches and pains to occur as she has had surgery. But she was in and out of hospital over Xmas and new yr eventually they did bloods which said her liver results was abnormally high they did a liver MRI which showed she had stage 4 liver cancer and there was nothing they could do it had spread to far I feel if they would have acted straight away you never know she could still be here. I’ve not much faith now so I know where you are coming from she passed away 26 January this yr. I’m totally devastated shellyanne. Take care. Luv. XX

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I’m so sorry. Its the 'what if’s that kill us. Today is a bad day. I cant believe he is gone. Forever. I cant find comfort. Its no where to be found. :broken_heart:

I can’t even imagine what you are going through as I haven’t lost a child but my younger sister was failed by them last year and died at the age 43, numerous times she went to hosp Ill and they treated her for infection knowing she had cancer, a low grade cancer they had said so ignored it really until she died suddenly and we got a postmortem, she was riddled, no infections, that was last July, 17th of this month my dad phoned his Dr to say he was ill, my dad had lung cancer, the dr said ill send antibiotics, he was found dead on his bathroom floor on the 18th something had ruptured, blood everywhere, if the dr had only looked at him or admitted him he wouldn’t of died alone and scared, I have no faith in our NHS anymore I hope you’re getting support and people with understanding are around you, its not an easy journey

I feel exactly the same I’ve no faith in them atall now. I’ve got to have new knees at some point but I’m terrified that something bad will happen it’s awful you put your whole trust in them and this happens I hope you get your answers and I hope action is taken I know it won’t bring our loved ones back but if it’s dealt with this shouldn’t happen again take care shellyanne xx

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Hi there so sorry to hear this. My son died on my birthday in march aged 20. He had generalised dystonia and aspiration pneumonia cause of death. I believe my son would be here had they not made the wrong decisions. I’ve also an investigation going on "serious incident " my son had autism aswell… I’m utterly broken. My sons neurological condition started in his teenage years he were fine till then. We have bereavement counselling through the hospice. Compassionate friends website is useful I’m on there. Big hugs to you I understand xx

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as a reporter, I would like to know how many “serious investigations” have been opened in the last 40 years.

granted, populations expand but adjusting to that, I would want to know or I would send letters to the BBC or so … because losing your child is the worst thing that can happen to someone.

I’m absolutely devastated having to go through this process. I think they would like me to go away quietly…but not a chance. I’m absolutely right in all I have said… im glad there listening to me and now have an independent doctor looking at the case how long will thus go on for?? I fear nobody in the nhs or there titles bring it on…x

In response to my last text, I went sown to Manchester to start the preceeding of my Dad’s funeral and clearing out his flat to find what looked like a crime scene, we hadn’t been told it was a brain hemorrhage that killed him, they removed his body then shut the door until myself and my sister turned up to clear his flat, it was the worst sight I have ever scene, I could see were his hands where holding onto the sink then sliding as he went down, where his head was due to the blood left on the rug some still wet due to amount, sink full, toilet black with blood, blood splashes on the wall, they have put on his notes died of lung cancer and 2nd COPD no mention of brain hemorrhage, due to the amount of blood at the scene the CID were called, it’s so wrong how things are handled and people are misinformed

Hi, I am so sorry for the loss of your son. My son died suddenly on 22April 2022 he was 47. He was collapsing and going unconscious for over 18 months and they were treating him for panic attacks. He had a cardiac arrest and never came round. Nobody, especially his GP considered it could be his heart. He was totally let down and I feel your pain. We have raised a complaint too.

I am so sorry you have gone through a similar thing. 18 months and they didn’t find it!! It beggars belief!! The NHS is on its knees. :pensive:

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Very shocked to read all these posts and really I’m not supprissed your all upset “don’t stop pursuing it” I had an issue too with my wife’s death although they gave her 12 months to live the quality of life was interrupted by what I can only call neglect in her treatments and she died maximum 3 months into her 12 months, it’s all very, very wrong and almost looked on has acceptable, can’t tell you how mad I am

Love and very very big hugs to all concerned :heart::heart::heart:

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Hi lean omg I’m so sorry for your loss. I can’t imagine how you begin to deal with finding this awful scene I would be absolutely mortified and devastated I’m struggling with loosing my daughter but I didn’t have to walk into that absolute horrific scene. Im so shocked about this. Sending you love and prayers I don’t know what else to say I’m just so upset for you shellyanne XX :heavy_heart_exclamation:

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