My husband has end stage emphysema and lung cancer, is in 60% oxygen we were told 6mths 9mths ago. Living with anticipatory grief is like living in purgatory. It is the crulest thing ever. My husband is gasping for evrey breath but ia so resitance to support. His anxiety is off the scale despite huge amounts of meds. He cries about how sad and fed up he is, saying if he was a dog we would put him down but refuses all help from professionals. He is in a bubble that we cant reach. Im just trying to carry on as normally as possible, still working, but im exhausted physically and mentally. Want it to end but don’t want it to end this is hell on earth 
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Hello suemed
I’m so sorry to hear of your husband’s end stage lung disease. I can totally understand how you’re feeling as my husband had end stage COPD when he died of a pulmonary embolism and pulmonary hypertension. He was also on oxygen and gasping for breath which, as you know, is horrible to see. Lung disease is one of the cruellest diseases.
Is there any way you can see your doctor for a sick note to have some time off work. You sound as though you need a break so you can concentrate on caring for your husband. Please take care of yourself and although there’s nothing I can say to ease your pain, you are in my thoughts.
So very sorry to hear your husband has COPD ,
My husband had it, and wouldn’t go on oxygen,
I lost my husband will be 3 years this October,
He had a cardiac arrest whist driving ,
Thinking of you, take care .