I’m new to this forum, and I’ve no idea if this is allowed or not, so please bear with me.
I know I sound totally selfish, and I hate myself for it.
My husband is dying, and I feel like my life is falling apart. He has cancer and is terminally ill. He’s 40. We’ve been together for almost 19 years. We have one daughter, who is 16. She has complex learning difficulties and is on the Autistic spectrum. She seems to be coping much better than I am at the moment, but I know that’s just a delayed reaction, and I’m trying to prepare myself for when it hits her.
I don’t really know what I’m asking for, I just feel like everything is wrong. I’m so angry - like everything revolves around Covid, and nobody gives a stuff about anything else.
Hi so sorry your going through this you yourself will need support with palliative care. I’m a learning disability nurse I think you right your daughter probably isn’t processing exactly what’s going on at the moment and can’t express her feelings. Please tell me if I’m wrong any changes with your daughter will be very upsetting. I can only advise you as hard as it is for you as well.
Give her clear descriptions explain if you can exactly what is happening also embrace the good times . Explain why you are sad. Maybe some counselling cognitive therapy for her. Please private message me if you want more advice
Take care of yourself and I hope you are getting the support you need
Your right Covid has taken over every thing
Yes, she processes things differently. She’s fully aware of what’s going on. We lost my husband’s dad to cancer two years ago. That was her first experience of losing someone - but this is on a whole new level.
She’s drawing him pictures, and writing in her journal. She’s incredibly empathetic, and I think she’s being strong for the both of us - which I’ve told her she doesn’t need to be.
I know she’ll react when the time comes. I think being able to see him on Messenger / face time is helping at the moment. The fact that he doesn’t look ill, is helping her, I think
So awful this situation my husband died in March 2 days before 1st lockdown he was in hospital on palliative care i brought him home also had cancer we were told 5 days before he died so could not get the treatment quick enough again Covid prevented treatment. Glad your daughter is putting things down. Take care xx
It’s still a shock. I only called 111 on Wednesday night, because he was experiencing pain in his leg. They transferred us to 999, but 999 rang back 4 hours later and told us to go to bed, as there were no ambulances available.
The pain was worse on Thursday night, so I rang 111 again at 7.00pm. The ambulance picked him up and took him in at 11.00p.m
Then, while he was still in A&E on Friday night, we were told what’s going on, and that it’s untreatable.
Agree the hospital my husband was in allowed 2 at a time Covid was just becoming more known but they had Covid ward next to where my husband was. Another reason for getting him home I know people are in different situations and not possible to care at home it’s so heartbreaking. X
I no exactly how your feeling I am 38 i have 18 year old son and my Partner has stage 4 cancer and I am Angry don’t no how to cope he started treatment in 2020 just as covid hit and feel covid took priority x