Dear Stephen,
Thank you so much for your response. At first what a beautiful and so sweet and kind looking soft expression on her face, very sensitive I think looking mam you had. It really touched my heart when I looked at her. The same beautiful blue eyes as my mam had. The cushion made me feel sad for you. It is so hard to see her presence and beautiful kind face in real life and then her picture on the cushion. What a loss Stephen, my mother was just like your mother the sweetest and kindest looking soul. Very high sensitive also. I can imagine the pain, I have the same myself.
I got to bed late at night and could not get up constantly thinking about that awful influenza A virus that infected her. And how we could have prevented it from happening. MY sister said yesterday, Debby we had never heard of it (we think she got it on her last day at the hospital, but I found out by reading that it is more likely that my sister who was here on monday and tuesday every week when I went to work, that she may be have infected her. On monday she had nothing, feeling good. On Tuesday she said I am not feeling well, very tired and muscle pains. That are the first signs of that awful Influenza A virus. And on wednesday she got sick and in bed and coughed for months. The incubationtime is 1 to 4 days. My mother was fine in the weekend and monday on tuesday she got quite red while laughing (could be from oxygen deficiency for a short moment) on wednesday she got terribly tired just like my sister on tuesday and on thursday at night to that awful hospital with 40 degrees. My mind does this every day, if we only would have known, my sister could have gone home and I would take a week of of work. Or I should have given her a facemask. But I think that you might think too that the “flu” as we knew it, was just coughing, a sore throat, and in bed with paracetamol. But now that I did research for weeks, that 95% of the people think that is flu. But that is not the flu, just a cold. The flu is a real sickness that can make people and especially older people so sick. I know I do the “what if’s” because when I think of a good outcome in my mind I do not feel the horrible pain for a moment of the loss that is irriversible. I said to my sister if mam would have passed away in a year or so from something else (a sickness in the body, what she thankgod never had, but as a way of speaking) and there was no cure I should have accepted that. Because a virus from “outside” makes the person sick not from within the body. And I think could have been prevented if we had known.
That situation where you were in with your precious mother, but that must be also so hard to except. Did you have those “what if” thoughts Stephen? And a bowel obstruction is that the same as ileus? Because you told me they tried to medically treat her in another way? I have been reading about it a couple of days ago. I can imagine you begged the doctors to operate her. Did you think of a second opinion in another hospital? And why did the doctor think it was to risky?
I feel sad for you Stephen that no one of your family looks after you. You are in such deep grieve and pain and lonely just like me. If a brother or sister comes by to talk and help talking about the grieve you feel a little less alone for a short while. But we cannot force them to do that. I am lucky having my sister. She is working today, so she will call me in the evening. And tomorrow we go to visit a cousin in the south, a 1 hours drive. She said let us do that so you get out of the house for a day. Nothing really makes me feel a bit better. I just want my mother to be here with me, she was just like your mam Stephen my everything.
So you live in Yorkshire, it must be so beautiful and all that nature. I live in a small village between Utrecht and Amsterdam. It is beautiful too. All small villages and water and small wooden bridges, swans and ducks swimming in the ponds. Very quiet and peaceful.
Yes, wonderful young age full of wonderment and innocence as you say. So you are/were real tea drinkers. Sounds like your mom had a sweet tooth just like I do.
So your brother visisted once a week. Was your mom always more close to you then your brother was with her?
Yes, I am eating better now. As you say grieving is a awful hard process. Since my mothers passing (I sometimes cannot believe I write passing, awful) 13 feb I did not feel a bit better, not even for 15 minutes. I feel the pain constantly, in my soul and in my body. Sometimes I think I cannot handle the pain anymore. but what else can we do. When my dear father passed, it took me 5 years before I felt a bit better. But then we still had our lovely mother to take care of. I am crying as I write this. I miss her so terribly, just like you miss your mam Stephen. Your mother looks like such a lovely and sweet lady, my mother did too. She was having beautiful blue eyes and thick curly grey hair. We were one since the day I was born. I feel a big part of me is gone now. A horrible feeling. When my sister is here we give each other a hug when she goes. And I tell her I miss her so much, me too Debby is what she says then. My sister stays strong and said if i Think of mam I will push her face in my mind away, because otherwise I get totally devastated knowing she is gone. So she is surpressing it a lot of the time. Yesterday she cried when she was here, she is just as sad as I am of course. But she says I have to be strong for my work for my husband and children, grandchildren. But she says they most of the time do not even ask her mam are you ok, only in the beginning. She said I am just as lonely as you are Debby. They do not understand the real pain. Because she was our sweet mother.
I glad to hear that you physical problems are not so bad anymore. Do you still cook dinner every night? I do the same Stephen, constantly crying is ok. It gets the emotions out.
Your livingroom looks beautiful also in the picture. I can imagine how happy you must have been there with your lovely mam, just having your routines daily. I did the same with my mam. Then my whole world was good. So your mom was still independent to a certain extent. Never complaining, just like my mam. Strong women from another generation as this generation. My cousin said now everyhting from the old days is gone. We both loved our mams and dads stories from when they were young. I do not like todays modern times. And most people being on their phones all day.
Your mother was just like mine Stephen emotionally comforting me too when I needed it. And so wise.
Read your part of the last time you undressed her and tucked her in bed. Is that something you think about too now all those last times. I said to my sister the last night I brought my mother to bed she was so sweet. She said am I not difficult for you and Hella (my sister) to take care of me that much? I said no mam, not at all. Dad and you did everything for us and now we take care of you. Never knowing that would be the last day I brought her to bed at home. Next day into the hospital. I said to my sister how I would love to help her again and here her voice Debby can you come to get me out of bed. She had such a sweet face and voice. I am so sick of missing her. I feel so lost without her. I feel sad for you too Stephen, it is the most miserable feeling of feeling so lost without our mam’s. How do you get through your days now?
I understand crying when you look at her photo. Your mam must have been such a sweet soul too I see that when I look at her picture. Life is so hard when we lose them.
How beautiful that you listened to music together, we did too. And that you were singing for her. Yes, making them smile felt so good. I would sometimes put music on and dance, my mother loved to watch that and it made her smile too.
Yes what you do about your bedritual now is what my neighbour does too. She said I talk to him (her husband passed away couple of years ago), to his photo. Well if it makes you feel good just do that.
I am glad for your mam that she could come home from the hospital. That is so much better in palliative care. Yesterday I said to my sister I wish we would have done that. Although I don’t know if that was a possibility, with oxygen etc. The timeline of the going home and starting the morphine says that you had 5 more days to talk to her at home, or was she to sick already to talk much? When the morphine started was she then still able to speak (may be on a very low dose)? That sounds like real well done palliative care, when she was settled, calm and peaceful. So different from my sweet mom. But my sister said she had monday, tuesday, wednesday and thursday where she was sleeping and breathing softly. It were those awful other things the brake through shortness of breath. I get EMDR therapy now for making those images less coming up in my mind, but they still do. 2 times, we will do more EMDR. Thank you Stephen for sharing how you were comforting your mam with stroking her hair and forehead. I often replay the things I did when I was with my mam in that hospital and how I tried to comfort her. Morphine started on sunday evening (my sister and I could hold her hand and my mom got to hold my hand so tight) and we said everything to her we wanted to say. That she and my dad were the most loving and caring parents and that we loved them and her so much, that she was the dearest mother we could have wished for. She was still talking back to us. And I stayed with her day and night. My sister and brother were there also during the day. Was your brother there too?
It makes me cry. It is so awful that we had to let them go. The ones we loved the most with all our hearts. And now live on without them, I don’t know how. You were the most loving son to your mother Stephen till the end. Now I understand why Liz and Phil called her queen Cilla. Because you treated her like a queen. And she and your dad must have been such loving parents to you and your brother.
Do you have that same feeling when they took their last breath it was so devastating. The body gets so white fast. When the bloodflow stops. We had our mother bring home to be here on her bed with cooling. We washed her with the very kind people who brought her home and dressed her. It was so unreal. I used to do that when she was alive. But I wanted to get her out of that awful hospital and be home again. For 6 days. We had a basked from light braided kind of wood with a ribbon around it with all fresh flowers. If I think back I shiver because I never wanted her to leave us. She still had to be alive if it wasn’t for that awful virus.
Was your mother at home to afterwards?
How sad the story of your dad 9 years ago (my father too 9 years ago). That is so yoing these days 75 years old. Have they try to do medical treatment? So you were real close the three of you. I know you miss him too, I miss me dad too. We are so on our own now that parents are gone. I admire you Stephen for still doing all the house shores and trying to keep going day by day. How many years did the real raw grieving take when your dear father passed away? It took me 5 years to feel a bit better that I could think of the good old days with him. But we still had mam to care for just like you did then. My life feels so empty and without love and warmth in my house now that she is gone. Still cannot believe it. I am surviving for almost 19 weeks now.
Is there one thing you want to share about what you have experienced that makes you believe there is something more after death?
Beautiful the mother and son bond. And that she never had to be alone because of you. That is such a gift fpr a parent is what my sister says too. We did it for 9 years together my sister and I for our mother. And promised it to our father. I am crying again. I really feel sick mentally and physically from missing her so bad. I always knew this would happen. My sister tries to help me saying we had dad till 86 and mam till 92, most children do not have their parents that long. That is true but I can hardly live without them. Life is such a struggle now, every day. I am high sensitive so I feel deep. My mother was too.
So you were there too all day in the hospital. Was there no possibility to sleep there? I could sleep there with my mother.
I am glad it is almost 16.00u now, in the evening my sister will call me. Sometimes I do not feel like calling strangers from the volunteer phone line. Although they are most of the time very kind. Does it help you calling now and then?
Thank you so much Stephen for sharing the photo’s of your beautiful mam. I can see she was a sweet loving angel. My sister appreciates it very much that you and I write to help each other feel less alone and share feelings.
Take good care of yourself Stephen and till next time. My kindest wishes back to you. Debby