Im new to this so i dont know where to start.
Our 2 year old son was diagnosed with a brain tumour on January 15th 2024 (we later found out from the biopsy that it was Group 3 Medullablastoma with MYC amplification with widespread). Everything happened so fast. It was so aggressive. He could no longer sit up on his own, stand or bear any weight on his legs and he could no longer walk. Our baby was just a shell of himself.
He had to have a drain fitted to relief the pressure on his brain. He had an MRI which revealed it had already spread to other parts of his brain and down his spine. He was too young for radiotherapy and the possibility of Chemotherapy was too futile. He was too poorly and weak.
The biopsy however, went smoothly. Leo had no bleeds on the brain during this surgery. However, despite being on steroids to help with the inflamation, the tumour had grown again and was pushing his brain onto his spinal cord. He passed away on the 21st January 2024. It was expected of him to pass within a few hours of him declining. But Leo fought on and gave us 58 more hours with him.
But 6 days.
6 days from finding out our sweet boy had a brain tumour, being transferred to a different hospital, seeing him hooked up to pain meds. 6days from finding out and he died.
His tumour was 3 months old.
We just had Christmas, leo has brand new toys here he never got to play with. Brand new clothes still folded, fresh from being unwrapped that he has never got to wear.
Instead now all we have is our boys urn and crippling silence from his room.
I physically hurt. I just want to hold him. I ache. I just want to smell him. Hear him. But i cant and never will again
I cant bare this anymore 
Leo was our only child. We agreed we would only have him because of spinal issues with myself. He was just perfect. Such a contented baby. So full of love and was so caring to everyone. He would gladly sit on your knee for cuddles. I miss his laughter, his stories that made no sense. I miss him chasing his best friend, our cat, Fifi. They were best buddies.
I miss him saying I love you and giving me kisses. I miss his smile which would light up any room.
He was 2!! Had his whole life ahead of him. He was supposed to start nursery this year.
I’ve battled depression (still do with BPD), hell ive survived a suicide attempt when i was very young. I havent come this far to finally get the one thing i have always wanted in life, to become a mother. Just for it all to be ripped away from me.
How much more do i have to go through.
Oh baby boy i just wish we could have traded places. I would in a heartbeat.
We will never give up, we will fight.
The only thing keeping me going is knowing that in Leo’s honour we aim to set up a charity to help fund research. Our biggest goal is to spread more awareness.
More needs to be done.
We promised our baby during his lasts moments and we will never stop until our last breath.
Leo i love you so so much.
XXX
there really are no words of comfort. Life is cruel. Take care of yourselves xx