Does anyone have any stories or experience to share.
My mother has condition Neurological Gait Ataxia & Apraxia which is causing dementia like symptoms that has worsened since a fall nearly 4 months ago.
Before the accident she would vaguely recognize myself - my wife and family, however since spending nearly 4 months in hospital 5 of which have been spent 80 miles away from me, she does not recognize any of us nor does she appear to be aware of us nor appear to see.
I have spent as much time as I physically can visiting her. However, I have now feel like I am starting grieve even though physically she is still alive, I feel mentally tired as does my wife, when I / we see her she is sleeping and unresponsive though obviously alive, however my father is reporting back that she is awake and attempting communication and everything is fine. Her eating and drinking is sporadic and other times she is on IV fluid drips and an assortment of drugs.
Prior to being transferred back down to Essex she was hospitalized locally to us and my father stayed with us maintaining a daily bed side vigil, that he is still keeping up to this day… Which is also not helping my mental tiredness as we are getting daily updates. Until a week or so I could cope with but now feel that mentally I can’t
I feel like I am doing my mother and father an injustice however I feel like I must be honest with myself and the family.
People have shared experiences with me saying in situations like this you grieve twice. I’d be interested to hear anyone’s thoughts?