Hello everyone,
I am writing to you as I need your loving help and kindness as I walk through the next 11 days.
Two years ago today, Tom was in the hospice. He was on the syringe driver pretty early on. We did not know how long he had left, and went morning, to afternoon, to evening - to those long nights.
I was lucky as I could be with him around the clock. What a relief it was to be with him after months and months apart when he was in the hospital. I had a recliner chair that I could put back and so lie next to him at night, holding hands through the frame of the bed that kept him safe.
He and me, together again, holding hands and loving each other - but that sense of security gnawed away by anxiety (mine), agitation (him) and the thrum of the hospice outside the door, 24/7.
On some days, I was asked by the staff not to leave the room. They did not elucidate but that was when they were wheeling someone who had died to the lift - to “take them downstairs”. That awaited us - and I knew it and it horrified me to my core - but I couldn’t show it, couldn’t speak it or give it its name - death.
Tom was confused in these early days there, nearly two years ago. He thought he was on a cruise and insisted I go and explore the ship. I went and walked the corridors of the place - seeing through open doors, all the people who were dying, alone, mouth-breathing. And then back into Tom’s room, telling how I had walked the decks and seen the Captain, and how lovely it all was, smiling, holding his hand, touching his cheek, reassuring him as best I could as, inside, my heart broke and broke again. Many of you reading will have had similar experiences.
My friends - it is so hard to remember the suffering but I hold on to Tom’s love and courage, to his stalwart bravery and his determination to hold on for as long as he could. I will post again as I get closer to the anniversary as I know you will all understand.
I am lucky to have a new relationship getting underway, in my life, a feeling like seeing snowdrops peeping through the earth after a long Winter. This does not mean I don’t still think of Tom, or miss him, or love him any less.
My friends, thank you for being there for me as I have walked this long road of grief - and for understanding why I need to post this today.
Hold tight where you are, let’s link arms and walk on together x