I lost my cousin back in may 2020, she was 46 with MS. we were very close practically sisters, and cause it was during covid, i couldnt go to her funeral, as im immunocomprimised i had to isolate, i had no closure, just over a year later in Sept 2021 i lost my dad suddenly to cancer. A few weeks after my dad passed my cousin whom i lost, her litter sister passed suddenly at the age of 40, we were also close, she always called me her sis and then to put the icing in the cake, i was diagnosed with an autoimmune back in 2017, ive recently been told that its life threatening, my organs are going to fail, however they can slow it down with immunosuppressants so i could have around 10 to 12 years, plenty if time with my family right, i will be in my late 50s, i was told 2 weeks ago that im not responding to treatment and have been transferred to Leicester, so i may have to face the issue that i might not even see 50 now, im 47 in 2 weeks, can life get any worse, trying to make good memories with my family, but my health makes it difficult, im so lost, have noone to talk to
Hi i lost my dad suddenly in September 2021, i was with him when he passed, its the only image and i can see, ive tried so hard to remember other stuff, but that image always jumps in, i dont want to remember him in that way, my dad wad my idol, he always told me i was his favorite, cause i was precious, you see im not suppised to be here, i was premature, the drs told my parents to say their goodbyes when i was a few days old, i always had a really good bond with my dad, i was the one that stayed with him when my parents split. So losing him was very hard,even now its like it only happened yesterday, he was only 69, he was to young to go
I can see that you’re new to the community, so I wanted to say that I am so sorry for the losses that bring you here. It sounds like as well as your grief, you are coping with so much right now. Thank you for reaching out to us - you are not alone.
You say that you are feeling as though you have no one to talk to. I have had a look for you and found this organisation called The Wren Project who offer listening support to people diagnosed with autoimmune conditions. Your hospital may also be able to put you in touch with organisations or support groups. You can also always call the Samaritans, any time, on 116 123. The community is here for you, too.
As well as coping with your condition, you are grieving for the losses in your life and for your dad. I wanted to share some of our resources that may be helpful right now:
Our Grief Guide self-help platform which has information, resources and advice to help you through your grief
Our Grief Coach text service, which sends you personalised text support via SMS
Our free Online Bereavement Counselling which is held via video chat
Our Bereavement Information pages which can walk you through what you are going through
I merged your threads as they were posted close together, and I wanted to make sure that you got the support that you need.
Thank you again for sharing – please keep reaching out and know that you are not alone.
Thankyou I’m going to contact the wrenn group, as I don’t know anyone else with the same disease, it may help me come to terms sith it and accept it