That is really very different. Neuro-endocrine tumours are notoriously difficult to diagnose and treat. I know that because a very dear friend of mine had one, and also because my husband had one when he was 39.
My husband’s tumour was diagnosed by his optician at an early stage, he had treatment via his nose to extract the tumour and then he had I think 6 months of radiotherapy to stop it from coming back. My friend, on the other hand, spent some time under the care of a psychiatrist from the age of 18 - 27, because her emotions were so unstable. When the tumour was diagnosed it seemed like a new start for her, she got married, began to travel the world as she had always wanted to do, and began living in one of the biggest cities in the UK.
I was 8 years older than her, and I was so happy she was free of her demons at last. She really was a very gifted writer, and all of us, her family included, thought that at last she would begin to achieve her dream of being a published poet. In writing, that is the hardest thing to do. Poetry isn’t as fashionable as it was in the last century. However, she had an argument with her husband one day, and he walked out. She wasn’t old enough to know that these things happen in marriage, and sometimes you just have to give it time to work itself out. She didn’t tell anyone, for some reason none of us know. She took her own life instead. The loss still hurts all of us. Even my husband, who I hadn’t met by the time she’d married, cried when we went to visit her parents to say how sorry we were.
But all that was around 17 years ago. Since then treatment has improved by leaps and bounds.
Curiously enough, I had surgery on 1st April to extract 2 slipped discs in my neck. I was discharged from hospital on the day of the surgery. The surgeon told me that it would take time for the pain to settle - luckily, he is amongst the best surgeons in the UK - and that for a few weeks after the op it would get worse, which it did. However I am now on the right side of the slope towards getting my pain under control.
I am not an expert, but I have worked in the NHS. The pituitary gland is awesome, but the problem is that it controls all of the major hormones in the body. That’s why a problem there causes problems everywhere - hormones control all bodily functions. That’s the endocrine system.
All I can say is that today is Sunday, the start of a new week. On Monday, armed with all the information you already have, you can start ringing around the organisations that will be able to help, the Brain Tumour Charity, Sue Ryder, MacMillan, Marie Curie. I know MacMillan runs a website where you can find online forums for all sorts of cancers, including the type your husband has. Here’s the link: https://www.macmillan.org.uk/cancer-information-and-support/neuroendocrine-tumours-nets
You can also try Cancer Research UK, which also has forums covering everything, but it’s not as busy as the MacMillan site - people post there all the time.
I hope this helps a little. The one thing I can say about cancer is that, when you are diagnosed with it, it feels like a maze that is impossible to escape from. But there is always someone who has escaped somehow.
The medical profession here in the UK has a massive problem now. One is COVID. The other is the fact that certain diseases when they reach a certain state - in cancer, it’s usually stage 4 - they have to tell the patient and his or her family that the patient has a terminal diagnosis. The simply means that at some point, the patient is expected to die of the condition they are being treated for rather than anything else.
In the case of my husband, he agreed to a DNR 14 days before he died. But your husband isn’t at that point yet. His cancer is being treated aggressively, with everything possible at this stage. In the future there are options like cyber knife surgery and also proton beam therapy, both of which are available on the NHS. There are also new drugs for chemotherapy coming out regularly. There is an organisation in London called The Sarah Cannon Institute, which provides clinical trials that are available to NHS patients if appropriate: https://www.hcahealthcare.co.uk/facilities/sarah-cannon-research-institute
I hope this helps. Otherwise, could you take a selfie of yourself looking really pretty and send it to your husband today? I think that might cheer him up.