The stem cell transplant will stop you from having to go to the hospital every week for injections. They hope that it will cure the myeloma for an extended period of time, the injections at the moment are a treatment, they won’t cure it, just keep you ticking over
I know how it works! I’m getting pretty clued up on Myeloma.
A forum of souls ? that’s what here is about souls helping loss souls to somehow cope with loss and life. Been posting quite heavy rock tracks on FB, Metallica, Linkin Park, Faith No More, I turned into the anti Christmas rebel! why not it’s fun being different.
Oh well that’s good then.
@ Everyone
At first I came here because someone told me about it, I came here for support. I now feel after 16 months since I lost mum the dynamics have changed for me. I don’t have a life at the moment nor a true family. Hence I spent Christmas Day and Boxing Day in a flat on my own, reading other people celebrating with other people. It’s playschool and I’m looking through the square window with jimima but it’s all fake! it’s a scenario we been sold through the decades, it’s almost like a play Re enact year after year. Mum liked to watch the Queen’s speech, I in the other hand never did as I knew it was fake scripted and filmed in summer. I did spiritualist videos in messenger for support, guidance.
I wanted to see the whole picture for myself, I wanted to prepare myself for something better then life today, because there has to be something better then this ? this makes making a decision about Stem Cell Transplant. If you can’t see the light at the end of the tunnel, then what’s the point to life. I didn’t sign up for this life, just like I didn’t sign up to council tax.
We all need a reason to go on, what a selfish world it is these days. If we are to survive we need kindness and compassion to others, not posting on social media what a good time we are having on Christmas Day stuffing our faces and drinking till we can’t stand. I had 2 bottles of wkd on Christmas Day. No turkey but had chicken roast potatoes, stuffing, and Christmas pud n log all day 1 meal. Hardly watched any TV that day, Dr Who but wished I hadn’t. Listened to a lot of music like most days, no change there. Did think about going out in the car, but where would I go ? The open road and my music.
.If I can move out my city and be part of something then that would be a incentive in life.
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I don’t do social media anymore for the reasons you’ve said @Keith68 i think when life’s a bit depressing it’s the last thing you wanna see, plus people only post what they want you to see half of it usually load of bollocks to the real life. Your in control of your destiny i was talking to my aunt other day mams sister and was saying how sad it was that the life my mam led wasn’t really good, she never really did anything with her life, never had holidays or much money, made bad choices too, but that was how she wanted to live. Sometimes you just have to try make the best of what cards you’ve been dealt, as shitty as they are theres always other people a lot worse off, just keep trying to remain positive as hard as it no doubt under your circumstances at moment
My mum saved most of her life and then got hit with it when laws were changed to punish savers. I wished I could of done something about that but I didn’t have power of attorney. Even though I had a sister mum didnt see her, there’s was hostility there has sister adopted a daughter well you never contacted sisters daughter, but daughter didn’t contact her. Last time I saw her she was probably 8 and I was 12 or 13 such a long time ago. My mum had younger sister last time I saw her 6 years ago. Sister had daughters which I not seen since 82 or even earlier. I wished a cousin in Oz a merry Christmas and saw post by daughters went on the profiles that made me unhappy as they with people and I have nothing. I got the council on my back with Council tax, I want to go to war with them. I just throwing my mum’s money away by paying them. Not to mention Myeloma Cancer from June. I think Christmas has had a negative impact on me, as I was thinking of re claiming my life. Now I’m thinking I need a goal to turn my life around. Otherwise the Stem Cell Transplant is pointless! what’s the point of living if your life going no where ? it’s pointless! mum wasn’t happy in Nottingham I remember a chat mum you won’t get that flat, where you going to go ?
I said Liverpool.
Mum take me with you then.
I never forget that memory. You have to fight today!
I not sure shave head, go out new years eve even though town could be busy and I have a Hickman line. Print a a 19 letter out to get a reduction in Council Tax or I will drag it out regards payment. If we don’t take a stand then we might have Matt tattooed on our foreheads. Either I get out this city by moving or by cremation.
Council tax isn’t worth a light, everyone gets fkd over in one way or a other, the ones at top get big fat bonuses and the ones who deserve better pay don’t get it, just have to grin & bare it. A move is definitely a good shout, and Liverpool is brilliant, night life everything it’s always alive, my sons g/f sister lives there just moved from Bristol and loves it, sometimes you have to do things totally out your comfort zone, I’ve always made decisions on happiness first, prob weren’t always the right ones but life’s too short to have regrets of wishing you’d made that choice twenty years ago, it’s not a good place to be in at the moment for you but as long as you do as your told regards hospital etc I’m sure you will get through this
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Ps try fit a trip to Australia one day ! My mam always wanted to go there but never did, I’ll try and do it for her one day, same as dad he wanted to visit this church in Prague decorated out with monks skulls and bones I’ll take some of his ashes there
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I need to push a move if then it makes it hard to do the Stem Cell Transplant. I will mention it to my consultant when I see her. I need to get Council Tax reduced, I need goals maybe mum is she watching me she be more proud of me for what I’ve achieved. Been to Liverpool twice once for a lads weekend and then got mum to go. I think mum was very impressed with how friendly the locals were and alive the city was. It bought back memories for mum as mum worked as a usherette back in the 60s when the Odeans were live venues besides cinemas. Mum met the Beatles and got their autographs my sister got her hands on it and no doubt flogged it. Back in the 70s or 80s a full autographs were fetching 1k. So I know all about Liverpool and the nightlife and scousers I really like.
I need to break this cycle and somehow lift myself out of it. I don’t have a family there’s a line in Robbie Williams song I need your love so F***k you all, I think Robbie always been a down to earth realistic person. I used to be a DJ I could feed off the people doing that especially when it was vinyl I didn’t need family. I remember it was my mum’s sister birthday one night, it clashed with a job, I did the job instead. I thought I be better off doing the job I could be me and not be judged. Obviously I did ask my mum about it and how it went Mum sat with friends of her sister but not much contact with sister. I’m glad I had a reason not to go, I hate being in company where I’m not wanted. I’m a Leo after all!
On Christmas day to give myself hope for the future. I paid 10 quid and bought 15 raffle tickets onaze. I saw it advertised on channel 5, 1st prize is a 4 million home in the Cotswolds and a quarter of a million in cash. Don’t expect to win not had much good luck recently. Some people spent 50 quid on tickets but the draw not been drawn yet.
The Beatles !! That’s class that my dad liked the Beatles i was brought up with music, it’s there to get you through hard times and good times, couldn’t imagine life without music.
There’s nothing as queer as families ive a big family and there’s been more fall outs over the years, I prefer to keep my circle small.
I’ll be in Liverpool next year before oasis gig can’t wait ! Life is for living and sitting moping about won’t bring your loved ones back but living the best life you can will make up for their lives ending too soon
I love music and was bought up on it mum had records. I remember a kids one with Disney stuff on and mum had copies of Fanando by ABBA, Do the Continental, Oxygen by Michelle Jarre, Baby Face, Under The Moon of Love by Showaddywaddy, Convoy. My first singles were Racey and Grease You the one I want, and summer nights. Fell in love with that film, I remember waiting for when they dropped out the charts so I could pick them up for 75p. Went through a mini madness phase but didn’t feel right, then a Police phase before getting into the Human League. I bought Don’t you want me and later a 2nd hand copy of Dare. Bought greatest hits on VHS and DVD too. I was a bit of a Duranie too. Met Depeche Mode a long time ago, and saw the Thompson Twins twice seen more since.
Vinyls were definitely the best sound, can’t beat a good bass or live music
I liked Duran Duran, Thompson Twins, Human League and Depeche Mode. Seem them all in concert except for Thompson Twins.
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Not seen DM or Human League! just got back from town, Next has been ransacked as usual, I had a tough couple of days over Christmas. Social media made it worse as it made me realize how alone I’m in this world. It got me questioning life and what’s the point of I’m not happy. I have a consultation with my doctor on Monday. Even after 16 months I’m still feeling the loss, it’s irreplaceable.
Sorry your Christmas wasn’t great. There is still the chance to make relationships once you have your health back. I know it seems a long way off, but there is still hope for that. You’re not old yet!
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Social media just made me feel even more alone. If we could get a refund for family’s I would of done it decades ago. My mum’s youngest sister her kids last time I saw them was when my nannar passed back in 1982. But hey they could reply to my cousin and wish her a happy christmas, they never wished me a happy Christmas in 56 years. Family I be better off surrounding myself with animals.
Got a friend coming with me to see consultant on Monday.
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Glad you’ve got sone support for Monday
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