Trying to come to terms.

Hi all . Sorry this is a bit long winded!!!
I’ve spent many an hour on this loss of a child forum. There’s a few things that strike me when you read people’s stories.
The first thing that hits you is the shear amount of parents that go through this absolutely devastating experience. Regardless of what age or the cause of death, we all find ourselves smashed by the enormous emotional sledge hammer. When you trawl through the stories there really are some heartbreaking terrible stories that us as parents endure. Regardless of how your child died. Accidents , illness, suicide, Even murder.
But we all suffer our own loss and the total destruction that follows with it.

When it happens to you, the indescribable pain, heartache and suffering is completely immeasurable. Everything in your world becomes alien . When the shock hits you it’s like learning to tread water when you don’t even know how to breathe.
None of us are programmed to deal with the trauma of loosing a child. There are no easy solutions. In my experience your mind has to learn to adapt to this new situation.
People try all-sorts of methods. Counselling, drinking, self help books. Research. Joining groups. Throwing yourself into work. But I’d say for the majority of us just actually getting out of bed and remembering to breathe is probably the 1st step on the longest journey you will ever undertake.

But before you know it weeks have past. Because as night for follows day time will march on relentless.

The 2nd thing that strikes me is , trying to make sense, trying to understand what has happened and trying to figure out how you live in this new world. Again no easy answers. It’s just baby steps all the way. The constant breaking down crying. The endless confusion you find yourself in. Most days you literally just exist, nothing more. Then comes the endless questions. The guilt that you didn’t do or say or see it coming. The scenario plays over and over in your head. You blame yourself constantly. If only, if only if only. But you can’t change anything. The guilt eats away at you till there’s nothing left inside of you. You become a shadow of your former self. But you WILL!!! carry on. There are periods of time, a day a week a month when you don’t even recollect how you even got there. Every milestone anniversary is amplified 10fold. But you will get through them.
You will find it changes you as a person. Your personality changes , your temperament changes, how you see things changes. You reach new understandings. I always say that time changes nothing, it’s your mind that changes , it adapts, and it can take 2/3/4 years before you even get to a place that you didn’t cry that day, or the guilt may have slightly subsided. I miss my boy every single day and I still ask myself all those questions, but I’m in a place where I can cope. But that’s all I do , cope!!!

Then the 3rd thing that hits you is . Trying to get other people to understand what it’s like, what you have gone through and are going through. The simple answer to that is. People don’t understand. That’s it.!!! Because unless they’ve walked in your shoes they can’t understand. There is nothing to measure what loosing a child is like. A person you brought into this world. Nurtured, taught, loved. Lived with. Experienced life with is suddenly taken away from you. How do you explain that to the great unwashed. You can’t because it’s to complex, it changes you on so many levels I can’t begin to describe how it affects you . You just have to live it. So for me talking to other bereaved parents is the only place I can gain an ounce of understanding. Only people that have travelled the same journey as me know what it’s like. Most of what we feel can’t actually be put into words it’s just an unwritten understanding that only we know.
When you meet or talk to other bereaved parents. You both have an immediate connection. You don’t have to become friends you both just know without words what the other one is feeling. People come out with all those mean well phrases like. He/ she is in a better place,. Well they are no longer suffering,. Just think of the good times. Or the best one is. Just try and move on it’s what they would have wanted. Bereaved parents don’t say any of those things. Because as well meaning as they are they mean nothing. You don’t want to " think of the good times and move on". You just want your child back. Or the one that grinds your gears the most. " Rite you’ve grieved long enough now, it’s time you got a grip of yourself". What we have experienced we have to live the rest of our lives with. Hopefully they will never have to travel this journey.

On a positive note. You will get there. There are better days ahead. You won’t think so for such a long time. You will feel you will never want to go on another day and that there is no end to your pain. But one day you will see the horizon again. It won’t ever be like it was before. But you will start living again. You will never ever forget your child . But you will learn to live along side your grief.
Ok thanks for listening
Take care
Jim

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Jim what can I say what a wonderful post you have expressed everything so perfectly.I am grieving the lossof my son our only child in March last year.As a widow the loss of our boy without my hubby beside me is so very hard because he would be the only one that would be feeling exactly as I do over our loss…Thanks again Jim.
Marg x

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Hello Jim and marg1 I found the post marg1,
Jim I lost my son last Sunday he took his own life he was only 30 and I’m crushed I just cannot see how to go on to say I’m struggling is a understatement days are long and night are even longer iv not stopped crying since last Sunday

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Hi Mark glad you found post.Its very early days for you I know but the post may mean more to you as the time passes.I wish I could say something more to ease your pain but I cant had a good weep this morning for my boy.Off to cem soon its a comforting but sad place to be seeing my hubbys name and then our sons underneath.Unreal.
Take care and be kind to yourself.
Marg

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Jim,
I’ve haven’t lost a child, but your wise words have helped me and I hope many others to try & get to a place that we may come to terms with what we are having to get thru.

Thankyou.
G. X

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Another perceptive post, and I always like your ‘long winded’! It’s so true, they don’t understand unless they’ve walked in our shoes. It’s over 6 years now since my daughter, 35, took her own life and the domino effect is still ongoing while my husband and I try to establish whatever the new normal is. Just when you think you’re getting there (wherever ‘there’ is) it seems something else comes along and knocks you off your feet because we’re so much more sensitive and fragile now. But I’d rather be where I am now than where I was in 2017, and the good days far outnumber the bad. The trouble is that the bad ones seem to hit you a bit harder because you’re not so used to them. Today is one of those bad days so I came back here for understanding and encouragement. Your post gave me both so thank you Jim, and you take care too, Kathy x

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Thank you so much for this jim it describes everything i am feeling feel think act to a T x sorry for your loss too i am 5wks in and i feel like I’m drowning on various days that just merge into 1 and feel like its just happened that i just had that horrendous call.

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Jim, your post was the best possible thing I could have read today. Thank you so much for writing it - it covers everything that’s going on in my mind, which I am terrified of losing control of. I lost my beloved son Daniel to suicide in August last year. He was 31 and had suffered with his mental health for some time. He also self medicated with alcohol to block out his overpowering anxiety. He came from a large and loving family and had a supportive girlfriend who thought the world of him. He leaves behind a 5-year old son from a previous relationship (this relationship did not end on the best of terms, but at least I am able to see my Grandson whenever I want - in fact, he stayed here with me last night which was lovely and exhausting all at the same time). I feel that Daniel never got over my husband Danny’s death from small cell lung cancer in December 2019. My 22 year old daughter and I are mourning them both and I am so proud of her as she is so self-aware and has accepted counselling. This week, she told me that it was time for me to reach out to people who really know what we’re going through. This site has been a God send and I have been following and reading many posts for some time, too frightened to contribute because talking about it somehow (for me) made it all the more real and I wasn’t ready to open up. In fact, I shut up like a clam and went into auto pilot when we lost Daniel. My family were staggered and couldn’t believe my so-called “strength”. The truth is, I was in a total state of shock and felt as if I was wrapped in cotton wool. The shock is wearing off. It is time to channel all these feelings outward, rather than inward. Up until now, I had been keeping a diary, which helped a lot. Writing it all down for an audience of one isn’t going to help now though, I don’t think. My heart goes out to all of us here who have been through losing a child. Jim, you are so right when you mention that others (however well meaning) just can not understand us and never will. That said, I had to ‘block’ a so-called friend not long ago, as she was furious I hadn’t told her about Daniel sooner because ‘she obviously wasn’t important enough’. She then threatened to cut all ties but I saved her the bother and did it for her. That was a wake up call, when I decided that I wasn’t going to take any shit from anyone else either. Another very valid point of yours was the view about your temperament changing. I am not sure whether I like the new me very much at the moment but I have to be ‘me’ in order to survive, if that makes any sense. And I want to protect my darling daughter because she has been so wonderful. So so sorry for waffling on, but I feel as if a dam has just burst and I know you’ll all get that. Thank you so much to everyone reading this now and I send much love and gentle hugs to you xxx

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4 years since I lost my son to a rare cancer, he was 32. My heart breaks every day that he is not here. I understand all you say Jim, I’ve had many a person telling me what I need and that I have other people in my life that need me. It’s crass and insensitive, the relationship with my son was like no other and nobody can replace that loss. We learn to carry it all, the loss, the pain, the heartbreak, the longing, we miss the very uniqueness that of them and they are our child no longer in this world. It’s impossible to impart these facts to others, I know, I’ve tried. If they were in our shoes they wouldn’t be so sure that they would do things “better”, for how can things be better without them, it can only be endured.
It’s a challenge every day to face reality or to live in a world that looks the same but is very much changed now. In the early days of grief it’s all we can do to get through the day, now we live with our grief at the same time as making our lives a little easier/positive/bearable whatever word you want to use. It takes effort, I’m making progress, doesn’t mean I will ever get a sense of joy that was part of my life before, just means I’m carrying it in a way that takes my son with me.
I will miss him till the end of my days and every day is a day closer to him.
Much love, take care. X

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Oh Mary 6 everything you say is so very true.Its nearly 12months since I lost my son and as a widow I felt as thou that extra special love we 3 had will never be felt by me again.I go out get on with life have booked a couple little breaks but I am and forever will be heartbroken.My head is full 24/7 with my lovely men.
I actually had the phrase “moving on” said to me.I was flabberghasted I didnt lose my rag.I just said I am 73 years old I have lost my hubby and my only child I have no grandchildren.This will be as far as I will ever move on believe me .I really dont want to say would you like to be in my shoes to them.
Yourself Jim and all those that have lost a child can totally relate to everything thats been said and to be honest I do find it uplifting in a way to have my thoughts written down by people who know the feelings.God bless you love Marg xx

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10 months ago I lost my 11yr old daughter to a horrible disease that ravaged her little body. 10 months on and I’m back on children’s ward with my son. The trauma and pain being back here to the place she died is indescribable but I’m having to put a brave face on for him.

The truth is I’m not “ok” or “so strong”, but am utterly broken and living an existence alongside the rest of the world in a place I no longer fit in. People don’t understand me and I don’t understand them.

Thank you all for sharing your stories about your children, made me feel a,little less alone tonight xx

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Oh Maria my heart goes out to you on the loss of your little girl.Its so unfair what she went through.Life is crap at times.There are no words I know.I hope your boy will be ok.My love and virtual hugs to you.Just got to try get through each day so very very hard xxx x

Thank you Marg, hour by hour is the best way to describe it.
It hasnt helped that we’re in the room she was in and all those feelings that is triggering.

So sorry to hear about your son, I can imagine hospital visits played a large part of your life too - a real rollercoaster of emotions. Sending much love to you tonight xx

Hi Jim

You have just taken the words out of my mouth. Every word you said is how I feel .

We lost our son last year and every day gets harder.
I just cant believe im not going to see him again, i try to believe he’s in a better world, I really hope its true, and if it is i would feel better as i know i will see him again. I pray i could see him to have a chat. He past suddenly left home went into hospital as saying not feeling well, i spoke with him at 9 that night and he didnt want to talk as elderly men a sleep in the ward. we said good night and said love you . Phone call 6 30 in morning next day to say he passed… Our life has changed for every.

So healing to gave tgese chats.
Shirley

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Hi marie i feel for you i do. 10mnths since i lost my 20 yr old son through a life limiting condition but it ended traumatic he died on my birthday… tomorrow il have to take my older son to hospital as hes autistic im dreading it…i feel i just cant cope half the time… sending strength xx

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Marg, I’m so sorry you also lost your husband and your son, that must feel terribly lonely. I hope you get some comfort in your memories of them. I don’t know what helps really other than being able to express our feelings when we can. Sending love, X

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Thanks so nuch Mary for those kind words we are all in this together.Sad exhausting.
I just going to bed I think I am coming down withis bug/virus everybody has had managed to stay clear so far.Never mind good night god bless x xxxx Anothet day tmorrow xxxx

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Thank you for expressing child loss so accurately. I wish I could express my feelings in such an articulate way & remember those words when trying to explain why I’m like I am since losing my precious son. As you say there’s nothing that measures against child loss, the pain is incurable. Enduring this day in day out is exhausting.
Love & strength to all grieving for their precious children :broken_heart:

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Your post is so encouraging to other parents who have lost a child…i think it will give people some hope for the future :two_hearts:

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Thank you Jim for expressing so well what it endlessly feels like to have your child die. My daughter was 35 and died suddenly and unexpectedly, never got a chance to say goodbye or tell her how much we loved her. Our life is so very different now without her, and I know it sounds melodramatic, but if I died tomorrow I would be glad to be with her.
Sending love and strength to get through to all the bereaved parents on this site :broken_heart:

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